The meeting with the gov. went really well. He talked with us for a little bit and shook Jacobs hand. It was so cute! Below are some pictures they sent us today.
Michelle, Pete and Jacob Roth
JACOB RYAN ROTH
Friday, February 11, 2011
IT'S OFFICIAL
Michelle, Pete and Jacob Roth
Thursday, February 10, 2011
CHD WEEK hits the Govenors office
On February 11, 2011 Jacob and our family will venture to Governor Tomlin's humble abode. He will be officially signing the CHD Awareness Proclamation that we submitted to him. We do this in hopes to raise awareness about CHD's and their affect on families here in West Virginia and around the world.
CHD's take the lives of more children than all childhood cancers combined so we need to spread awareness and help raise research funds for these illnesses as well.
Won't you join us in thanking Governor Tomblin for stepping up and proclaiming that February 7th through the 14th is CHD Awareness week in West Virginia and wish us luck at the signing tomorrow.
With love and many blessing
The Roths
CHD's take the lives of more children than all childhood cancers combined so we need to spread awareness and help raise research funds for these illnesses as well.
Won't you join us in thanking Governor Tomblin for stepping up and proclaiming that February 7th through the 14th is CHD Awareness week in West Virginia and wish us luck at the signing tomorrow.
With love and many blessing
The Roths
Sunday, February 6, 2011
Surgery date moved up
We received a call from Cincinnati on Friday that Jacob will have surgery on March 3, not the 4th. So a day earlier.....just one day closer to getting this all over with and getting our super hero home! Continue to pray for Jacob and very painless recovery.
Blessings to all
Michelle
Thursday, February 3, 2011
A Moms Perspective
I saw this poem on another heart site and had to post it........its great and it tell exactly how we heart moms feel at every possible moment.
A mother’s perspective.
by Stephanie Husted
You passed me in the shopping mall...(You read my faded tee)You tapped me on the shoulder...Then asked..."What's a CHD?" I could quote terminology...There's stats that I could give...But I would rather share with you...A mother's perspective.
What is it like to have a child with a CHD?
It’s Lasix, aspirin, Captopril…
It’s wondering…Lord what’s your will?…
It’s monitors and oxygen tanks…
It’s a constant reminder to always give thanks…
It’s feeding tubes, calories, needed weight gain…
It’s the drama of eating…and yes it’s insane!
It’s the first time I held him…(I’d waited so long)
It’s knowing that I need to help him grow strong…
It’s making a hospital home for awhile…
It’s seeing my reward in every smile.
It’s checking his sats as the feeding pump’s beeping…
It’s knowing that there is just no time for sleeping…
It’s caths, x-rays and boo boos to kiss…
It’s normalcy I sometimes miss…
It’s asking do his nails look blue?
It’s cringing inside at what he’s been through.
It’s dozens of calls to his pediatrician…(He knows me by name…I’m a mom on a mission)
It’s winters homebound…and hand sanitizer…
It’s knowing this journey has made me much wiser.
It’s watching him sleeping…his breathing is steady…
It’s surgery day and I’ll never be ready.
It’s handing him over…( I’m still not prepared…)
It’s knowing that his heart must be repaired…
It’s waiting for news on that long stressful day…
It’s …praying…it’s hoping…that he’ll be okay.
It’s the wonderful friends with whom I’ve connected…
It’s the bond that we share…it was so unexpected…
It’s that long faded scar down my child’s small chest…
It’s touching it gently and knowing we’re blessed…
It’s watching him chasing a small butterfly…
It’s the moment I realized I’ve stopped asking why?
It’s the snowflakes that fall on a cold winter’s day…
(They remind me of those who aren’t with us today)
It’s a brave little boy who loved Thomas the train…
Or a special heart bear…or a frog in the rain….
It’s the need to remember we’re all in this plight….
It’s their lives that remind us we still need to fight!
It’s in pushing ahead amidst every sorrow…
It is finding the strength to have hope for tomorrow.
A mother’s perspective.
by Stephanie Husted
You passed me in the shopping mall...(You read my faded tee)You tapped me on the shoulder...Then asked..."What's a CHD?" I could quote terminology...There's stats that I could give...But I would rather share with you...A mother's perspective.
What is it like to have a child with a CHD?
It’s Lasix, aspirin, Captopril…
It’s wondering…Lord what’s your will?…
It’s monitors and oxygen tanks…
It’s a constant reminder to always give thanks…
It’s feeding tubes, calories, needed weight gain…
It’s the drama of eating…and yes it’s insane!
It’s the first time I held him…(I’d waited so long)
It’s knowing that I need to help him grow strong…
It’s making a hospital home for awhile…
It’s seeing my reward in every smile.
It’s checking his sats as the feeding pump’s beeping…
It’s knowing that there is just no time for sleeping…
It’s caths, x-rays and boo boos to kiss…
It’s normalcy I sometimes miss…
It’s asking do his nails look blue?
It’s cringing inside at what he’s been through.
It’s dozens of calls to his pediatrician…(He knows me by name…I’m a mom on a mission)
It’s winters homebound…and hand sanitizer…
It’s knowing this journey has made me much wiser.
It’s watching him sleeping…his breathing is steady…
It’s surgery day and I’ll never be ready.
It’s handing him over…( I’m still not prepared…)
It’s knowing that his heart must be repaired…
It’s waiting for news on that long stressful day…
It’s …praying…it’s hoping…that he’ll be okay.
It’s the wonderful friends with whom I’ve connected…
It’s the bond that we share…it was so unexpected…
It’s that long faded scar down my child’s small chest…
It’s touching it gently and knowing we’re blessed…
It’s watching him chasing a small butterfly…
It’s the moment I realized I’ve stopped asking why?
It’s the snowflakes that fall on a cold winter’s day…
(They remind me of those who aren’t with us today)
It’s a brave little boy who loved Thomas the train…
Or a special heart bear…or a frog in the rain….
It’s the need to remember we’re all in this plight….
It’s their lives that remind us we still need to fight!
It’s in pushing ahead amidst every sorrow…
It is finding the strength to have hope for tomorrow.
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