Sunday, August 24, 2014
Wednesday, September 14, 2011
Jacob has been very busy as well. He and Jacob Baker are the Co-Chairs for this years AHA Start Heart Walk. They have been on billboards all over the Charleston area, TV commercials, news stories, and radio spots. These boys are both walking miracles and we need to thank organizations like the AHA for their survival. If not for donations to the AHA which funds research our boys may not be here today.
See what our little guys have been up to!
Wednesday, July 13, 2011
Ruth lost her son Corbin early this year to multiple heart defects caused by Williams Syndrome. Had her son had been monitored by pulse ox when he was in the hospital after birth the defects most likely would have been caught and his life may have been saved. Ruth is a very strong woman and I respect her tremedously for what she is doing.
Check out the link below to see Ruth and myself interviewing with WVVA News and please support Pulse Ox screen by signing the petition at the end of this post.
Moms Trying to save lives of CHD infants
Wont you sign it to save the life of a new born?
PULSE OX PETITION
Wednesday, May 11, 2011
On July 6th, 2008 Jacob was born at 7lbs 2oz and 19 inches long, and "healthy". We had learned in previous months that Jacob had Tricuspid Atresia. This is condition in which the right side of the heart failed to form.
On July 30th, 2008 he has his first heart surgery (pulmonary artery band) that would allow him to stay awake eat, and grow as needed until he was able to have his second surgery.
His second surgery (bi-directional Glenn/atrial septectomy) was completed on March 13, 2009 and we went home four days later on St. Patrick's Day.
His third surgery (Fontan) was performed on March 8th, 2011 and we again went home on March 17th, St. Patrick's Day.
I walk for my son and to raise awareness for Congenital Heart Defects. I walk because if not for research and funding these procedures may not exist. I walk because my son is a "SURVIVOR" and I want to support him anyway I can. I walk because my son is alive and thriving. I walk because I love my son. I walk because I want every parent and child affected by a CHD to know that there is hope and that they have all the support they may need. I walk because I believe in miracles.
Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Thursday, April 28, 2011
Monday, April 18, 2011
• Congenital Heart Defects are the #1 birth defect. Source: March of Dimes
• Congenital Heart Defects are the #1 cause of birth defect related deaths. Source: March of Dimes
• About 1 out of every 100 babies are born each year with some type of Congenital Heart Defect. (approx. 40,000/year) Source: Children’s Heart Foundation
• Nearly twice as many children die from Congenital Heart Defects in the United States each year as all forms of childhood cancers combined, yet funding for pediatric cancer research is five times higher than funding for CHD. Source: Children’s Heart Foundation
• This year approximately 4,000 babies will not live to see their first birthday because of Congenital Heart Defects. Source: Children’s Heart Foundation
• The cost for inpatient surgery to repair Congenital Heart Defects exceeds $2.2 billion a year. Source: Children’s Heart Foundation
• Of every dollar the government spends on medical funding only a fraction of a penny is directed toward Congenital Heart Defect research. Source: Children’s Heart Foundation
• Though research is ongoing, at least 35 defects have now been identified.
• 4-8% born with CHD have Hypoplastic Left Heart Syndrome
• 4-10% born with CHD have Atrioventricular Septal Defects
• 8-11% born with CHD have Coarctation of the Aorta
• 9-14% born with CHD have Tetralogy of Fallot
• 10-11% born with CHD have Transposition of the Great Arteries
• 14-16% born with CHD have Ventricular Septal Defects
• Although some babies will be diagnosed during gestation or at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHD is not detected until adolescence or adulthood. Source: March of Dimes
• It is a proven fact that the earlier CHD is detected and treated, it is more likely the affected child will survive and have less long term health complications. Source: March of Dimes
WHAT CAN YOU DO?
Please help us make a difference. If you are local and you would like to walk with team Jacob you can do so by clicking here. When asked, select that you want to join a team and type in Team Jacob.
Where: WV State Capitol Grounds, Charleston
When: September 17th, 2011, 8am
Our Goal this year is to raise $3000. Last year we raised $2,000 and we are starting much earlier this year. Please help us reach that goal.
Wednesday, April 6, 2011
On our way out of the office Jacob started doing his super hero pose in front of all the doctors and nurses! They were laughing so hard, they loved it!
Jacob still has to get blood-work every two weeks until the coumadin gets leveled out. After that it will be once a month. No rough housing for another two weeks, but normal boy play doest exclude rough housing. He just can't have anyone sitting on his chest.....duh or take any direct hard blows to the chest. Other than that he is good to go! Guess I need to start posting post-op at home updates now.
Thanks again to everyone for praying for our little super hero!