Wednesday, May 11, 2011

Why I'm Walking for Team Jacob

At 28 weeks into my pregnancy we found out that our baby had "something wrong" with the heart. We had just learned hours earlier that we were having a boy whom we would name Jacob. Excitement turned to fear and uncertainty when I received the phone call later that day. Darkness loomed with thoughts that our baby may not survive the pregnancy let alone surviving after birth. Boy we were wrong!

On July 6th, 2008 Jacob was born at 7lbs 2oz and 19 inches long, and "healthy". We had learned in previous months that Jacob had Tricuspid Atresia. This is condition in which the right side of the heart failed to form.

On July 30th, 2008 he has his first heart surgery (pulmonary artery band) that would allow him to stay awake eat, and grow as needed until he was able to have his second surgery.

His second surgery (bi-directional Glenn/atrial septectomy) was completed on March 13, 2009 and we went home four days later on St. Patrick's Day.

His third surgery (Fontan) was performed on March 8th, 2011 and we again went home on March 17th, St. Patrick's Day.

I walk for my son and to raise awareness for Congenital Heart Defects. I walk because if not for research and funding these procedures may not exist. I walk because my son is a "SURVIVOR" and I want to support him anyway I can. I walk because my son is alive and thriving. I walk because I love my son. I walk because I want every parent and child affected by a CHD to know that there is hope and that they have all the support they may need. I walk because I believe in miracles.


Life is not measured by the number of breaths we take, but by the moments that take our breath away.

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