Testing phone blog

Surgery Date Confirmed

Jacob's actual surgery date will be Friday, March 4, 2011.  We will actually be driving up Monday evening because he has an echo scheduled at 8:30 Tuesday morning.  After that we are going to try to take him to the inside zoo about a block from the hospital, he loves animals.  Wednesday he will be admitted and all the "fun" begins.

We are really nervous about this one since the recovery time is so much longer and he is so much more aware of everything.  Also the infection risk concerns us as well.  Since we both have to work when we get back its going to be showers galore when we get home, sanitize city, bleach paradise!  We are just praying for a successful surgery and a painless recovery for our little guy. 

Just keep us in your prayers, especially Jacob.  Thanks to all!

God Bless
The Roth's

Surgery #3 has been scheduled



Our son, Jacob, will be having the Fontan procedure sometime between March and April of 2011. This will be his third and final open heart surgery to correct his congenital heart defect known as Tricuspid Atresia. His first surgery was on July 30, 2008 when he was 19 days old, and his second was on March 13, 2009 when he was 8 months old. He came through both of those with flying colors and has done great ever since. Lately we have been noticing some blueness in his face when he gets out of breathe so we decided to get him checked out by his surgeon in Cincinnati.


The third procedure will be quite a bit more invasive than the previous two. The recovery time is estimated at 14-19 days. He will spend a minimum of 4 days in the CICU and a minimum of 10 days in the step-down unit. He will have two chest tubes this time, one in each side, as well as a feeding tub and a catheter (all of which will be placed during surgery). There will be tons of other wires and tubes which are too many to name.

The procedure itself sounds simple and looks simple according to the video we watched. As if any surgery is simple, right? They will be placing a piece of Gortex conduit in his chest. They will disconnect the pulmonary artery from the lungs and the inferior venacava from the heart and place the conduit piping between the two so the blood can go directly to the lungs. The conduit will be adult size as it has to sustain him for the rest of his life. The surgeon told us that he would have a great deal of pain in his abdomen area, especially his liver while his body adjusts to the change in blood flow. This is the reason for the feeding tube. He will not feel like eating, and since nutrition plays a huge part in recovery they are going to do that for him for a while.

He will be on Captopril, Lasix and Enalapril for 6-8 months after surgery.

Because of this foreign material they’re grafting into his body there will be a higher risk for infection. This is why his surgeon wants to the surgery as the viral season is tapering off. We will basically be on home confinement when we come home for a few months. No visitors that are sick, or may have been exposed to any illness, such as having kids that are sick. We will not be able to take him anywhere unless it’s to go to the doctor. Everyone that comes into the house must sanitize thoroughly.

Basically infection is our enemy after we get home. We will be seriously sanitizing the house before we leave and might have someone sanitize before we get home since everything will be sitting there for over two weeks just gathering dust and stuff.

I hope this is enough but not too much information for everyone. Thank you again for your continued prayers for Jacob and our family. We can truly feel the love and prayers and it warms our hearts to have such wonderful friends and family who care so deeply.

We will go up to Cincinnati on March 1, 2011 to meet with his cardiologist. March 2 is when they will perform the echocardiogram and heart cath. The surgery itself will be on Thursday or Friday. They will call us back today to give us the exact date. I’m guessing Friday March 4th.


With Love,
Michelle Roth

AHA HEARTWALK VIDEO 2010

Thanks to Kathy Baker and the news staff at WCHS-TV8/WVAH-Fox 11 for providing this video to us.

2010 HEARTWALK

The walk was fantastic and it was a beautiful day for it!  There were tons of people there!  I finally got to meet Kathy Baker, mother to Jacob Baker, who has HLHS (hypoplastic left heart syndrome), meaning the left side of his heart did not develop in utero.  His condition is totally opposite from our Jake's.  Our Jake is missing the right side of his heart.  As my husband and Kathy both pointed out, together our two Jake's make a whole heart!  How cool is that? 

It was so nice to finally meet Kathy and her oldest son Aiden, they are such a wonderful family and have really been through trying times.  Kathy and I hope to spread awareness for CHD's so that other families can cope and have support if this terrible defect strikes their family. 

Thanks to everyone who supported this cause and continues to support Jacob and our family. We love you all!

Update on Money raised for 2010 Heart Walk

As of today, between personal donations from family and friends and Jean Days at my work place, money raised has totaled $522.00!  This brings Team Jacobs grand total to $1200.00. THIS IS FANTASTIC!!!!!  Thank you all for your support with this cause.  We will be doing the same thing next year so remember to put back some change for our little ones :) 

Please also continue to keep all of the heart babies and children in your prayers as they fight their daily battles with these diseases.  They truly show us all the meaning of life and how to live it and we should not take one minute with them for granted.  Again thank you all for your support! 

Michelle Roth

American Heart Associate Walk 2010

I am helping to raise funds for TEAM JACOB this year for the annual AHA Heart Walk 2010.  Please follow the link below to make a donation in support of TEAM JACOB.  Also forward the link to all of your friends.  The more money we raise the better the chances are for babies and adults facing heart issues.  This cause touches me deeply as most of you know so I am driven to provide awareness to all my family and friends about Congenital Heart Defects and other heart diseases.  Our goal is $250.00 and we have 170.00 to date, so help us reach our goal if you haven't already!  :)  Love and Hugs from My family to yours.

Michelle and Jacob Roth :)

http://heartwalk.kintera.org/faf/donorReg/donorPledge.asp?ievent=334420&lis=0&kntae334420=FF67FC643045488584A4335CC85C8D67

CHD Awareness video that everyone needs to watch

Make video montages at www.OneTrueMedia.com

Jacob Update 8-24-10

Well the time came for Jacob to have a change made to his bed.  He can now get in and out on his own however he won't....LOL.  At bedtime he walks in and gets in the bed only if we tell him to, and in the morning he sits in the bed until we come in and say he can get out.  I think that is a good thing?  He loves his bed now thank goodness.  He hasn't been eating very well the past few days but at least he is eating a little here and there. 

His cardiology appointment went well early this month.  His SATS were down to 87 from 91 six months ago.  Dr. Garmany said we would notice him starting to slowly turn blue once they drop to 85 or so.  We spoke to Jacob's surgeon in Cincinnati and he said they generally like to have kids at 30 pounds or more before they have the Fontan procedure.  Jacob is at 27 right now so I don't think it will be long before he starts showing signs.  I did notice yesterday when we were playing in the yard that he was really out of breath so the low SATS are definitely showing. 

Keep on praying for our little man!